Fight for Finn Foundation takes part in the Ironman Challenge to raise funds
Finn O’Donovan may only be 7 years old, but he’s been through more than most adults ever will.
At the tender age of just 5, Finn was diagnosed with Duchenne Muscular Dystrophy. The condition is the most common type of muscular dystrophy, affecting around 1 in 3,500 boys. Girls very, very rarely develop DMD.
It’s a horrible, terminal illness that slowly and progressively affects all muscles of the body, including the muscles that allow you to breathe, and hold the spine straight.
Children affected by the condition generally lose the ability to walk by 12 years of age, after which, they need to use a wheelchair.
Those who are diagnosed with DMD have a life expectancy of late teens to early 20’s.
But like so many children faced with such horrific circumstances, Finn has only shown strength, inspiring so many in the community, especially the NSW Police.
Finn’s dream is to become a Police Officer, so to help him fulfil it, NSW Police made him an “Honorary Police Officer For a Day” last year, to assist in finding the two bad guys who stole Easter eggs from the Easter Bunny.
Since then, he’s been known as the “Boy who saved Easter”.
To help with Finn’s ongoing care, services and equipment, members of the community including some in NSW Police, established the Fight for Finn Foundation.
So far, they’ve raised $150,000 and they’re rallying us to help them raise more awareness and funds, not just for Finn, but for research into treatment for DMD.
NSW Police Police Sergeant is one of the Committee Members of the foundation, and she joined John and Erin to tell them about their latest fundraising event, which is to take part in the Ironman Challenge!